My mom spoke her last words over the phone to me before she went into coma. She had a brain aneurysm and was losing platelets on Heparin. When this happens its an immediate signal that you are allergic to Heparin. You never give platelets on top of that because platelets cause blood clots with Heparin allergy. So not only did she get damage from Heparin and blood clots, but the added 2-3 bags of platelets created blood clots all over her body. Lungs, finger, heart, and several all over her brain. She was talking, moving, following commands, sitting up, and standing. She was on her way to recovery before this happened. She spent 10 days on Heparin and she is part of the very small population that is super-hyper allergic to Heparin, not a normal "allergy" as they say everyone is "a little allergic," so they missed all the signs that she was severely allergic and continued to give it to her far beyond what they were supposed to. All because the better clot prevention medication is super expensive. Really........ Heparin needs to be taken off the market and drugs need to be more affordable so hospitals can use drugs that aren't going to destroy peoples lives.

She is in coma now, in hospital and she is not brain dead or a vegetable, but she has not woken up yet. It is likely she will never come home because we cannot take her out of the hospital in her condition. I would love to, but she requires hospital care at this time and is still being treated for a variety of hospital illnesses and infections. Everything that could happen to my mom has happened and mistakes were made. Big ones. My mom has chiari malformation and is probably the parent that has EDS, and is most likely why she has the allergy and the vascular issues. Had we known something like this would happen to her, we would have been more proactive to check for aneurysms of the heart and brain. Now we know for me and my kids, if nothing else. We are hoping and praying for a miracle for her. She had already gotten one when she lived, but now we need another so she wakes up. Thank you for all your support, and I hope that by sharing these videos, we can help someone out there be more aware and take this more seriously, and get check for aneurysms if you have EDS!
YESTERDAY'S VIDEO:    • The Day Before She Went Into a Coma  
Hadar, Andrea, Rafael, Abigail, Kitty & Rudy. From Israel to America! This is our story told in a daily vlog for the past 13 years!
#Autism #OCD #Lipedema #EDS #connectivetissuedisorders #awareness #chiarimalformation

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Rafael's C-section Birth Vlog:    • My Obese Pregnancy and Delivery  
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Andrea used to live in Florida, until she met her husband Hadar online on World of Warcraft. We met for the first time in Israel, and got married in America. Andrea moved to Israel and had been living there for 10 years. We are happy to announce that.. Our family just recently moved to AMERICA! We made it! We are a fun loving and happy family. We are not fake family vloggers. You will never see us being fake. Views are not as important to us as our integrity. Many of our family and real life friends watch our videos. You can be assured that what you are seeing is 100% truth and reality. You will not only see the best of us, but the worst of us as well. We all have a story to tell and it's not always pretty. For us, it will always be real. I do not make videos just for you. These are my family's memories. There would be no point in making videos if it weren't the truth.

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About our son: Rafael was diagnosed with #OCD and High Functioning #Autism, also known as #Asperger's syndrome, on the Autism spectrum (ASD). We have a few videos of Rafael so you can understand his diagnosis better:

DAY IN THE LIFE of a 3 year old with Autism (Aspergers Syndrome):    • AUTISM DAY IN THE LIFE - 3 Year Old w...  

OCD in a 3 year old:    • OCD in a 3 year old  

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