it's that time of year again! EDS & HSD awareness month comes around quick! Unfortunately living with this condition has meant I'm getting this video out much later than planned but awareness should be all year round right? So I'm back for my 6th annual series of Ehlers Danlos Syndrome & Hypermobility Spectrum Disorder Awareness Month videos with my dazzle of zebras from across the world. This year we have zebras from different countries sharing their experiences of what it's like to live with these rarely understood conditions on a daily basis.

This is the first video in the 2022 series and we are talking about what EDS and HSD are and what is it really like to live with these conditions on a daily basis from symptoms which impact our bodies and the aspects with impact our whole lives.

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Huge Thanks to Everyone who was involved in this video:

Alexis, Alberta, Canada, 21 , hEDS, She/They, IG: @therarewanderer IG & TW: @ggalexis12 Blog: https://therarewanderer.travel.blog/

Amy, Yorkshire, UK, 23, hEDS, She/her, IG: @voldycat7 YT:    / @voldycat  

Audrey, Washington, USA, 22, IG: @chronically_revived

Bradley, Victoria, Australia, 30, vEDS, he/him, IG: @veds_zebra

Caroline, Essex, UK, 36, hEDS, she/her, IG: @lilcaz10

Charlotte, West Sussex, UK, 24, hEDS, she/her. IG: @charlotteamylouise

Eloise, Hampshire, UK, 23, hEDS, she/her, IG: @eloisecrowson

Jade, Washington, USA, 17, she/they, Awaiting diagnosis, IG @the_service_squad_

Jenni, Essex, UK, 25, hEDS, She/her, @chronicallyjenni

Jill, The Netherlands, 27, hEDS, she/her IG: @jillhubersmooren @leesdromen (eds focused sccount)

Jo, Lincolnshire, UK, 22, hEDS (possible cEDS) , she/they, IG & TT: @stripesandsunflowers_ TW: @jocopson_

Joey, Melbourne, Australia, 24, hEDS, he/him, IG: @mindful_joey

Lizzie, Sheffield, UK, 32, HSD, She/They, @slaywithsparkle

Maya, Somerset, UK, 27, hEDS, she/her, IG: @lovingchronicme TW: @mimogen22

Rebecca, Brighton, UK, 30, HSD, she/her, IG: @superpadg

Robin , Vancover, Canada, 30, hEDS, she/they IG: @robinhahnsopran YT:    / @robinhahnsopran  

Rosie, Pennsylvania, USA, 18, hEDS, she/her, TT: @heyitsrose_18 YT: @Heyitsrose18

Simon, Devon, UK, 42, hEDS & cEDS, He/him, IG: @the_bodyboarding_eds_pilot

Sol, Mexico City, Mexico, 29, hEDS, She/her, IG:@solprni @ehlersdanlos.mx

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