Dr. Leigh Ramos-Platt from Children's Hospital of Los Angeles presented during the CureDuchenne Cares Family Summit.
Duchenne is a disorder that affects more than the skeletal muscles needed for mobility. It affects multiple organ systems and multiple facets of patient and family life. Seeing a child as a whole child requires physicians and other providers to speak to one another. For the families that are new to this diagnosis, this discussion will help you ask the right questions of your care team. For families that are more familiar with this diagnosis, this discussion will reinforce what care your sons should be receiving. For more information go to: www.CureDuchenne.org