Born with a heart condition and a rare genetic disorder, Jaxson may only have months left to live.

While his parents hope their 17-month-old son will live for longer, they are trying to treasure every moment they still have together.

That time, however, is largely being taken up by fighting the NHS for basic supplies and for a community nurse to visit their home to oversee the toddler's needs.

Jaxson's family share their story with ITV News as new figures from charity Together for Short Lives show that only 30% of local areas in England are meeting the required standard for 24/7 end of life care for children at home.

Read more on the ITV News website: https://www.itv.com/news/2024-03-22/p...

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