Jacob’s rare diagnosis requires him to sit for weekly infusion treatments at Primary Children’s, and he will continue to have weekly treatments for the rest of his life. With the help of his infusion treatments and his team of doctors, Jacob is still pursuing his passions and living an active life. In 2021, Jacob was the 2021 Utah PGA Jr. Player of the Year for his division. And in 2022, he was cleared to follow two passions that move at a faster pace – mountain biking and skiing. In 2022 he took first place in two of three races on the NICA mountain bike team. Jacob says his personal philosophy is “Take Away the T” from “can’t.” He hopes his story can inspire others to “Take Away the T” and pursue what makes them happy.