Kennedy and Lincoln with MPS 1 Hurler Syndrome, play in the snow!
The Ladd Family The Ladd Family
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 Published On Nov 25, 2019

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Very rare for our area to get snow this early in the year... Hope you enjoy watching Kennedy and Lincoln throw snowballs and sled their little hearts out! I know it is practically a little more than a dusting but they love to play in the snow. While we were in Cincinnati for Lincoln and Kennedy's transplants, they took advantage of all the snow they got! Both of them love being outdoors and after almost having our Childrens lives taken from us, we love seeing them happy and being able to be outside!

Kennedy and Lincoln both have MPS 1 Hurler Syndrome. You can read more about Hurler Syndrome here.
https://mpssociety.org/learn/diseases...
They had to undergo a bone marrow transplant at very young ages (Kennedy 9mths, Lincoln 3mths) as a treatment for their disease. There is no cure for MPS 1 Hurler Syndrome. When we were blessed to be able to come home from Cincinnati with our daughter Kennedy, we started The Kennedy Ladd Foundation, Inc. A 501c3 organization to raise funds for research for a cure and to provide iPads for kids with MPS 1. You can also follow the foundation page here    / @thekennedyladdfoundation   and learn more on the website at www.KennedyLadd.org Kids with MPS 1 have 3 options. 1-transplant before the age of 2 (after the age of 2 their bodies are too far gone for the transplant to be of any assistance) 2-Enzyme Replacement Therapy. (a man made enzyme infusion for life) 3-do nothing (Bodies will deteriorate and usually pass away by the age of 5-10). The Ladd family will continue to fight and spread awareness to find a cure for MPS 1! We need your help! You can help by doing one or all of the following! Donate to The Kennedy Ladd Foundation, Inc., Donate to the MPS Society www.MPSSociety.org, Tell a friend about MPS 1, share our page, follow/share our Facebook Page @ Kennedy and Lincoln Ladds Prayer Group, follow/share our Instagram @ KennedyandLincolnLadd, subscribe to our channel, share our channel, and lastly but most important if you don't do anything else, we ask that you Pray for our babies and the rest of the families going through the same thing. We can't wait to share more with you!

www.KennedyLadd.Org
www.MPSSociety.org
The Kennedy Ladd Foundation Channel-   / @thekennedyladdfoundation  

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#MPS1 #HurlerSyndrome #Cure2025

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