Charlotte Conn | A personal perspective of Huntington's disease
653 views
0

 Published On Nov 10, 2023

Charlotte is a passionate Huntington's disease advocate, she is a carer for a family member with Huntington's and is gene-positive. An active part of the Huntington's disease community, Charlotte is an ambassador for Huntington's Disease Association and HDYO and also posts about her experiences online, creating content to raise awareness.


Charlotte will share her journey with Huntington's throughout her life, speaking on being a carer, advocacy, anticipatory grief, loss and living with the phenomenon of knowing she will one day develop symptoms.


'The Hidden Destroyer' is the story of a young girl's fight against a seemingly impossible enemy.


If you are affected by Huntington’s disease and need support or advice, please contact us on 0151 331 5444 or email [email protected].


•••••••••••••••••••••••••••••••••••••••••••••••••


Once this video ends, YouTube will auto-play another video related to the current topic you are watching. If you are not comfortable with this and are worried that YouTube will suggest a video you don’t want to see, use the scroll bar at the bottom left of the video (desktop) or top right of the video (mobile) to switch auto-play off.


Please note that every Huntington’s disease experience or journey can be different and not all information shared by the Huntington’s Disease Association will be relevant to all. Please discuss with your GP before undertaking any exercises or medical advice given in our videos.


#HuntingtonsDisease

show more

Share/Embed