#raredisabilities #overcomer
Video chapter links below description.
Every year, Debbie Jorde and her son and daughter, Logan and Heather Madsen, speak to first-year medical students at the University of Utah in Dr. Lynn Jorde's Human Genetics Course.

Heather and Logan were both born with the rare disease, Miller syndrome, and a rare lung disease called Primary Ciliary Dyskinesia, PCD. They also have autism. Their talks are enlightening and informative for not only medical students, and medical professionals, but also the general public.

Debbie Jorde shares what each of their births were like for her. She didn't know they would be born with disabilities. Geneticists told her it would never happen again after her first baby's birth. That's not what happened. Three years later, on April Fool's Day, Debbie's second baby was born with the same rare disabilities as her first.

Watch her story! Remember to Like, Subscribe, and Share! Thank you!

Video Chapters
00:00 Intro
01:14 Debbie Married
01:56 Debbie Pregnant
03:26 Debbie In Labor
04:16 Baby's Born with Visible Problems
06:13 Debbie's Reaction to Baby with Bent Arms
08:38 Debbie Wants to See Baby
16:01 Baby Heather's In Trouble
20:00 Debbie Leaves the Hospital Alone
21:54 Debbie Visits Baby Heather In ICU
24:06 Taking Baby Heather Home
25:12 First Doctor Appointment: Plastic Surgeon
26:05 Debbie Cries Because Surgeon Cold & Clinical
26:30 Debbie Asks For Different Plastic Surgeon
26:57 Cold Surgeon Checks Baby Heather After Surgery
27:21 Debbie Warms Up to Plastic Surgeon
27:48 Debbie Compares Surgeon's Personality to Doc Martin
28:20 Funny Story About Surgeon's Reaction to 2nd Baby's Birth
29:26 Geneticist Calls With Rare Syndrome Diagnosis
30:23 Geneticist Says Reoccurance Risks Zero
31:03 Debbie Decides to Have a 2nd Child
32:16 Debbie Has UltraSound at 7 Months Pregnant
32:37 UltraSound Tech Predicts Healthy Girl
32:45 UltraSounds Not As Good in 1980
33:20 Debbie In Labor With 2nd Child, Baby Logan
33:54 Birth on April Fool's Day
34:21 In The Delivery Room For Birth
35:40 Baby Logan In Intensive Care
36:00 Debbie Calls Family and Friends
37:17 Baby Logan Goes Home
37:44 Emergency With Baby Logan
38:50 Logan Goes Home, Debbie Tube Feeds Logan 6 months
39:39 Heather Tube Feeds Her Doll
40:02 Father Loved Family
40:42 Financial Collapse
41:35 Father Depressed
41:59 Father Has Affair
42:20 Father Abandon's Family
43:00 Debbie Looks For Help
43:33 Read More of Family's Story in EIGHT FINGERS EIGHT TOES: ACCEPTING LIFE'S CHALLENGES

More of their story is in Debbie's book, "Eight Fingers and Eight Toes: Accepting Life's Challenges"
https://www.amazon.com/Eight-Fingers-...
The theme of Debbie's book is: challenges are made easier when one focuses on solutions to problems that can be changed or improved, and accept the problems that one can do nothing about. Learn from real-life examples!

Read more about their inspiring story, overcoming challenges, and read Heather Maden's prose and poetry on Debbie's website:
https://www.debbiejorde.com/

Watch the Documentary, LOGAN'S SYNDROME, available to STREAM online NOW and on DVD!
Learn more: http://www.logansyndrome.com/

Stream LOGAN'S SYNDROME documentary:
AMAZON http://a.co/d/7HTEI6r
YOUTUBE https://bit.ly/2F7EROU
GOOGLE PLAY https://bit.ly/2Cm3uXE
ITUNES https://apple.co/2zPelbv
VUDU https://bit.ly/2Cm3uXE

Also, visit Logan Madsen's website to see his stunning art: https://www.loganmadsenfineart.com/

We are overcoming challenges together! We are overcomers!

Thank you!