Angiosarcoma survivor leads change in rare diseases | TARGET: Cancer Podcast | Ep. 49

In this Target Cancer podcast episode, Dr. Corrie Painter, a survivor of angiosarcoma, shares her non-traditional journey and the challenges of a rare disease diagnosis. Her story highlights the need for greater awareness and support for rare cancers and diseases. Dr. Painter also shares some insights on the "Count Me In" initiative and how it accelerates cancer research by connecting patient data with the research community.

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00:00 Introduction
03:50 Being diagnosed with a rare cancer, angiosarcoma
17:08 Starting a nonprofit
23:22 From cancer survivor to cancer research scientist
38:04 Building an open source of cancer genomics

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#cancertreatment #cancerresearch #angiosarcoma

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— ABOUT CORRIE PAINTER —
Corrie Painter is the associate director of operations and scientific outreach in the Cancer Program of the Broad Institute of MIT and Harvard. She leads the Angiosarcoma Project, a nationwide direct-to-patient genomics initiative aimed at generating the genomic landscape of this orphan disease, and she is working to build scientific resources to enable broad-scale rare cancer research across many indications. A trained cancer researcher with a Ph.D. in biochemistry, Painter serves as the associate director of Count Me In, which launches patient-driven research projects across multiple cancer types. In this role, she partners with advocacy groups and engages patients with metastatic breast cancer, angiosarcoma, and other cancers through social media in order to carry out the Metastatic Breast Cancer Project, the Angiosarcoma Project, and other patient-driven genomic initiatives where patients can consent online to donate their stored tumor samples, saliva samples, medical records, and their voices in order to directly accelerate the pace of discovery. These efforts can be followed on Twitter @MBC_project, @ASCaProject, and @Corrie_Painter, and on Facebook, the Metastatic Breast Cancer Project and the Angiosarcoma Project Working Group.
Prior to joining the Broad Institute in 2015, Painter was vice president and cofounder of Angiosarcoma Awareness Inc., a nonprofit devoted to fostering a collaborative atmosphere between researchers in order to generate data and reagents that can be shared by the sarcoma community as a whole. She continues in this role alongside her work at the Broad Institute.
Painter obtained her Ph.D. in biochemistry from the University of Massachusetts Medical School and completed her postdoc in cancer immunology at UMass Medical School’s Cancer Research Institute.


— ABOUT DR SANJAY JUNEJA —

Dr. Sanjay Juneja is a triple board-certified Hematologist & Medical Oncologist serving as Chief of Oncology Service at Baton Rouge General Hospital, a social & news media personality known as the 'TheOncDoc' with over half a million followers, and one of fifteen social media doctors participating in the Healthcare Leaders in Social Media Round Table Series for the White House.

He has been featured by The Washington Post as well as dozens of national podcasts and regional news channels (PBS, CBS, NBC, NPR), and has given keynote speeches and partnered with American Cancer Society, BeTheMatch, Leukemia & Lymphoma Society, Harvard University, Louisiana Department of Health and several others.

— ABOUT xCURES —

The xCures platform is a direct-to-patient and direct-to-physician portal that identifies the most promising treatment options for advanced cancer patients who are not responding to standard of care therapies.

The platform captures data that also helps accelerate the development of promising new cancer drugs, expand the approved uses of existing drugs, and demonstrate value for reimbursement.

Learn more at: https://xcures.com/
Facebook:   / xcures.platform  
TikTok:   / xcures.platform  
Instagram:   / xcures.platform  
LinkedIn:   / xcures  
Twitter:   / xcures_platform  

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